Zac

Zac has been home 18 months now. Time sure flies by doesn't it? In April we started on an adventure to see if the bladder issues Zac started having last summer were due to his tethered cord syndrome. The MRI and SSEP tests all came in normal. While this was a huge relief it still meant something wasn't right. Zac has always acted younger, he is the same size as Zeb, he struggles with many things. We thought it was just delays and he'll catch up, we thought it was just he still doesn't understand enough English and we thought it was his spinal bifida. Well it never quite fit and so when I called to schedule Zac's 7 yr well child visit I asked for extra time with the Dr. The nurse ( whom we've grown quite close to in the last 18 months) asked what was going on so I told her I suspect Zac is younger than what we were told. I gave her examples and brought up Zac's paperwork had a few holes in his story that were different from Zoe and Zeb. She said she would talk to the Dr and get back to me. A week later I get a call from the pediatrician saying he agreed with me and ordered a bone age scan. I piled the kids in the car and after school we headed to the hospital. On the following morning we get a call that Zac's bone age was 3 1/2. I was also told they are not completely accurate but this is a huge gap from what we were told. They advised a 2ND opinion with the pediatric dentist. We miraculously got an appointment for the next morning and the dentist concurs that Zac is between 4 and 5 giving him time for delays that boys usually have and delays for malnutrition. We are all in shock over this and so I call the medical genetics clinic Zac has been going to for the last 18 months because they have been trying to figure out what is going on with Zac all this time and hitting a wall. The recommended 3 tests to see where Zac was with motor, cognitive and emotional development. I called and yet again we had a miraculous appointment set up for the next morning in Indy. I brought all the paperwork with the holes in it the bone scan results etc... They tested Zac and he tests out at 4.8 yrs old. If he were almost 7 he would be mentally handicapped in all areas but because he shows no signs of that they concur that he is 4.8 to 4.10. This age coinsides with when he recieved vaccines in his SWI. It also gives him the normal language delays and SWI delays a child would have. It also leaves room for the smaller stature a child with spinal bifida would have. The genetics specialist concured and closed Zac's case saying he is a normal 4 almost 5 yr old boy with spinal bifida. Thank You GOD for answers. Now to convince the urology clinic that Zac needs more time before they start saying he has a serious problem, they told me on the phone it doesn't matter he has a problem. I am not ready to accept that until he has had time with everyone knowing his real age! The problems are typical of a 3 to 5 yr old being pushed beyond what they can do and typical of a child who was only conditionally potty trained and not ready to be trained. I plan to be heard in 2 weeks or everyone there will hear me! The Nuerosurgeon has assured me he agree with the findings and will get us another Dr who will listen if we need it.
So we will turn back Zac's clock 2 yrs and he will celebrate his 5th birthday on the 15th of July and revisit kindergarden even though he graduated. This will allow him to actually be able to do the work and learn more english and concepts before going on to 1st grade. He can blossom out of the shadow of his sister and become his own man! I will become a permanent fixture for 3 years with the kindergarden class!!! 3 kids in 3 years there!!! Oh what fun we will have!!! GOD's plans are always perfect and make perfect sense! What joy we feel to know Zac is going to be OK and everything is perfected already! Now how do I change Zac's COC to reflect his age when we get it changed?